Trigger Warning: This article contains detailed descriptions of a cancer diagnosis and treatment, including: Bowel cancer diagnosis, invasive medical procedures, chemotherapy side effects, mental health challenges and emotional trauma related to serious illness.

In late spring 2024, my wife, Emma, and I embarked on a whole house renovation project; re-wire, new central heating system, new kitchen, new bathroom; the absolute works. We'd planned this for the best part of five years, squirreling money away for a complete re-do of our home. We organised tradesmen for each of the phases of work and set about ripping the house to bits, uncovering an endless list of worrying issues, hidden behind the endless amount of plaster we removed from the walls. It was an incredibly stressful time with bills mounting up from the difficult discoveries we made.
Thankfully we'd moved out of the house, away from the dust and dirt, living out of two suitcases in my sister in laws attic room in Gateshead. We made frequent trips home to clean up / put our head in hands as we surveyed the devastation. A property developer I am not.
As we battled through the filth laden chaos Emma came down with a bout of constipation. Initially we thought nothing of it but, as the days passed, we thought it best to get her checked out at the doctors. With Emma in her early forties the GP decided to schedule a flexible sigmoidoscopy at hospital to rule out anything suspicious. We duly attended the appointment not really giving it a moment’s thought as we tried to firm up definitive dates and times from our elusive Tradies. Following Emma's procedure, I was called in to meet the doctor.
The mood suddenly shifted; the doctor looked serious, checking pages of notes on a clipboard. She'd found something “sinister”. The doctor explained it was undoubtedly bowel cancer and Emma would need urgent scans to ascertain the stage, size and type of the tumour. Emma went ashen white, gripping my hand as she looked around the room for answers that simply weren't forthcoming. I felt sick. The next few hours are a blur. I remember calling Emma's sister, her parents and mine but I have no recollection what I told them. Emotional shock plays havoc with memory processing.
Over the next week we returned several times to the hospital for a dizzying array of lengthy CT, PET and MRI scans to assist in allowing the surgical and oncology teams to devise a collective treatment plan. Although the waiting was interminable, endlessly playing through 'what ifs' in our minds. Amazingly, it only took ten days after her initial appointment for us to meet with Emma's surgeon to hear the news.
It wasn't great.
Emma had a six-centimetre, stage 3, rectal tumour that was too large to operate on. She required months of chemotherapy and radiotherapy to shrink the tumour to a size where it could be removed. However, due to the tumours position it was vital for Emma to have a stoma formed to ensure her bowel didn't become blocked and delay her treatment. Stoma, coming from the Greek word meaning ‘opening’ or ‘mouth’, is an opening on the abdomen that can be connected to either your digestive or urinary system. This will allow waste (urine or faeces) to be diverted out of your body. Emma required a colostomy and, although this is sometimes a temporary measure, this would be permanent in Emma's case.

Emma's stoma surgery took place just two days later. Over three hours her surgeon rerouted her lower bowel, forming her stoma on her abdomen. The incredible nursing staff worked with her to show her how to change her bags, clean her sutures and adapt to her new life. Her diet was one of an eight year old’s dreams. Cake, white bread, chips. Protein and fibrous veg was replaced with carb heavy stodge to allow her bowel time to adapt and heal. She spent ten days on the ward before I was able to bring her back to her sister's, where we spent time processing the difficult journey ahead.
It was tough; emotions ran high, some family members and friends found it hard to take in, shying away from her diagnosis. Anxiety robbed us of sleep and time seemed to slow to a crawl but, through it all, Emma took to her new life as an 'ostomate' in her stride. Bobby, her given name to her stoma, healed well with only a couple of late-night visits to the hospital with complications from small blockages.
At the Freeman Hospital, a fortnight after her surgery, we met Emma's Oncologist, Dr. Hashmi. He is a straight taking man in his early forties, who was laser focussed in his directness at our meeting. Her tumour was large and, given Emma's relatively young age, he wanted to throw the harshest form of chemotherapy at it. Four drugs, delivered in six rounds, with an initial seven-hour infusion on a ward and an additional 48-hour infusion, delivered at home through a connected Baxter pump. She would have twelve days of recouperation between rounds. The drugs were incredibly potent, with three, terrifying A4 pages of potential side effects.
This was, he explained, the harshest form of chemotherapy Emma could potentially endure, and it would be, in his words, absolutely awful. She would lose her hair, eyebrows and eyelashes, she would be in pain, she would struggle to eat, she would have insomnia, she would get cripplingly painful neuropathy in her hands and feet, she wouldn't be able to drink, eat or touch anything cold. Catching coughs, colds or, God forbid Covid, could hospitalise her. To help Emma stand a chance of recovery they needed to poison her; destroying her immune system to allow the drugs to melt away the growing tumour. Without it, Emma would have less than a year to live.
But wait, there was more. The radiotherapy side effects would be just as bad; horrible burns and troubling inflammation, but with the absolute cherry on the cake of a rapid onset menopause which she couldn't receive medication for until her cancer was in remission. The final boss level of her treatment would take place in the New Year. Once the tumour was significantly reduced in size, Emma would need an Abdominal Perineal Resection; the removal of her lower colon, rectum, and anus, leaving her with what is affectionately called a 'Barbie Butt'.
As playful as the name is, this is a major surgery that will require months recouperation with another laundry list of potential life changing issues. We were told to expect Emma to be unable to work for well over a year. All of this was laid out for us in fifteen minutes of rapid-fire chat that was sensationally difficult to take in. The news was seasoned with a carrier bag full of leaflets and information sheets. To say we were reeling from the news was an understatement.
wo days before her chemo commenced, I rallied people to come together to help get us back into our home. Although not fully finished, the house was liveable. The people working on the house, on hearing of Emma's condition, pulled out all the stops to get us back in. I'll be forever grateful to the electricians, plumbers, kitchen fitters and decorators who worked late into the night, rejiggling their schedules and, in some cases, refusing payment, to help us have the space for her recovery. The project was only missing Anneka Rice and a dune buggy to complete the charitable aesthetic.

Chemotherapy started in August at the Tranwell Unit at the Queen Elizabeth Hospital. The unit was previously a secure mental health ward, where we were greeted for our frequent visits by Fred Watson's imposing concrete sculpture, Inside Outside, a 3.5 tonne of carved granite symbolising the mind's ambiguous relationship with internal and external worlds.
“Dominating the composition, a stairway and arch represent social hierarchies and institutions. Against these large, roughly carved masses, a dangling telephone, carved in intricate trompe l'oeil detail, focuses sharply on the lack of an answer, a listener, or communication. “
As Emma was struggling to talk about her illness and her feelings with those closest to her, the significance of the sculpture was not lost on me.
On the ward, Emma had a line fed from her forearm into her shoulder, an area with less nerve endings. The main drug, Oxaliplatin, was known for causing discomfort and severe nausea. It would feel like molten lead was being poured into her veins. The first session took eight hours and left Emma severely ill. Fever and exhaustion buddied up with projectile vomiting that, to clean up, required me to dress like a Hazmat operative due to the incredibly toxic nature of the drugs in her system. The heavy hitting antiemetics kept the majority of the sickness away but she felt dreadful and I could do nothing but wait for the side effects to subside.
My own mental health had taken an absolute hammering during all of this. Having had a mental health crisis pre-pandemic and broken hip a year later I knew the tell-tale signs of both mania and depression. The thought of losing Emma was interminable, manifesting in nightmares, panic attacks and abnormal heart rhythms. I was holding on to so much tension I pulled a muscle in my shoulder and was offered diazepam to help calm me down. As we progressed through Emma's chemotherapy sessions, I started attending counselling sessions at FACT (Fighting All Cancers Together), meeting with Debra who helped me to process the maelstrom of emotions. Having worked in cancer care for years, she understood the medical jargon I brought to my sessions and she was able to empathise around the complexities of treatment. The sessions were a lifeline, a safe space to unpack what had happened, and what was yet to come.
Chemo was tough; really tough. Despite her stoic nature, Emma was terrified that her drug regime wouldn't work. Chemo, for small number of patients, is completely ineffective, causing more problems than success. Three rounds in, we met again with Dr. Hashmi following a second round of scans. The tumour was shrinking, her treatment was working. It was only at this point that Emma cried, thankfully, for all the right reasons.

Heartened by the news, Emma arranged a wig fitting at The Wonderful Wig Company in the Ouseburn. As part of the package of care she received a voucher to subsidise the cost of wig. Lack of body confidence during chemo can have a dire effect of patients so we spent two wonderful mornings there while she tried on various shapes, styles and colours. She was getting ready to go back out into the world, in a limited capacity admittedly. The company couldn't have been nicer, treating Emma with such kindness and sensitivity, finding the perfect new look for her. Armed with her new locks, a colour returned to her face that had left her back in the Q.E months before. When I asked her what she thought the change was she immediately fired back with quote from Alec Baldwin's character Jack Donaghy, the Vice President of East Coast Television and Microwave Oven Programming for General Electric from the NBC television show 30 Rock, “Andrew, your hair is your head-suit!” I had married well.
Chemo continued, but under a different, softer light. The severity of it didn't diminish but our attitudes were changed. We met so many others enduring their own battle. Watched in sadness as some were told the treatment wasn't working and cried tears of happiness as others rang the bell to signify the end of this part of their journey.

In late November, Emma was disconnected from her infusion bottle for hopefully the final time, looking resplendent in her Happy Hour t-shirt as it was her turn to cathartically sound the bell. To applause, tears and hugs of the nurses and family members, its resonance a calming, joyful balm soothing the last fifteen weeks of treatment. We had reached the first base camp.
Chemotherapy was, of course, just the start, with radiotherapy starting only a few weeks later. Daily fifteen-minute sessions of concentrated radiation targeted at Emma pelvis with the aim of further shrinking her 'bulky tumour'. Despite the short nature of the treatment this didn't factor in the travel to and from the Freeman, blood tests and meetings result in a good three hours spent there each and every day. We'd been given the laundry list of side effects to expect but had crossed our fingers we'd been lucky in dodging them.
Sadly, our luck had seemingly run out. On New Year's Day, following five days of intense sickness and diarrhoea, Emma found a large amount of blood in her stoma bag causing us to present at A&E. Ten hours of waiting in an assessment room, while Emma lapsed in and out of consciousness, was far from the New Year's vibe I was looking for. Her initial diagnosis was one of Radiation Colitis; where radiotherapy causes large scale inflammation and bleeding of the intestines. However, it was slightly worse than that. Her blood work showed Neutropenic Sepsis; a very worrying condition for cancer patients where their white blood cell count is abnormally low. While standard white blood cells help your body fight infections, neutrophils are important for fighting infections caused by bacteria, and Emma had none. The hospital was experiencing a huge influx of winter sickness bug patients when we arrived, so Emma had to be isolated from patients and visitors.
She spent nearly a fortnight in hospital; initially in Gateshead's Q.E, before being transferred to a specialist cancer ward at the Freeman. Unable to eat or drink, Emma remained on a drip to raise her potassium levels and injections to kick start white blood cell regeneration in her bone marrow. Thankfully, the meds stemmed the tide and Emma, now being monitored closely by her Oncology team, was able to continue her radiotherapy in hospital before being deemed fit enough for discharge.
As radiotherapy wraps up, we are, of course, still filled with a nervous hum of anxiety and worry. The disorientating sights, sounds and smells of hospitals, coupled with the worry of “will this work” is ever present, but now this plays pianissimo as opposed to the fortissimo overture that soundtracked our initial months post diagnosis. Realising and accepting we are not in control of the situation has allowed us lean into the treatments and interventions; to put our trust in the hands of the specialists working on our behalf.

If any good can come from these awful circumstances, it's this; we've been given an odd sort of freedom. Emma's cancer diagnosis has reframed our day-to-day life. Long term planning has been replaced with short term, impactful moments. When the chemo and radio exhaustion permitted, we took a walk along the river, or went for a coffee, or watched a ludicrously formulaic movie on Netflix. These micro adventures, however trivial, offered a chance for gratitude, to spend time together and to appreciate our relationship. Removing everything other than the essential has been incredibly liberating. No longer catastrophising on “but what if X happens”, instead leaning into the little glimmers of hope and happiness and luxuriating in them. A slow walk around Saltwell Park became a calming moment in nature, not just an allocated hour on an exhausting list of must-dos.
Excepting help from friends and family, something I, in the past, had actively shied away from, became of a cornerstone of our days. Whether it was receiving help moving our possessions back to the house or enjoying lovingly cooked dishes delivered by a team of faux meals-on-wheel drivers offered respite from the day-to-day household admin. We're a long way from all of this being resolved but we are certainly en-route, navigating our way with a basic but helpful roadmap. And certainly not one gleaned from Google. If you, or people you know, end up on a similar path I implore you to avoid the all too easy to access digital encyclopaedia; there be monsters. For us, the magnificent MacMillan, Bowel Cancer UK and Colostomy UK have been our guiding lights.
As the chaos of Christmas and New Year were replaced with a very different set of circumstances, I am minded by Derek Mahon's translation of one of Horace’s Odes, titled ‘How to Live’. A timely reminder to set worrying aside, and to give thanks for the time we have with each other.
Don’t waste your time, Leuconoé, living in fear and hope
of the imprevisable future; forget the horoscope.
Accept whatever happens. Whether the gods allow
us fifty winters more or drop us at this one now
which flings the high Tyrrhenian waves on the stone piers,
decant your wine: the days are more fun than the years
which pass us by while we discuss them. Act with zest
one day at a time, and never mind the rest.
— Derek Mahon, The Hunt by Night (1982)
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